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New
Web Site focuses on
Genes and Autism
A
new web-based genetics education tool for parents
and family members of individuals with autism, funded
by the National Alliance for Autism Research (NAAR),
has recently been unveiled.
The web site, www.exploringautism.org,
is designed to promote genomic literacy among families
with a history of autism spectrum disorders so that they
can better understand the genetic components of autism,
the latest genetic research advances, and the potential
implications of those advances. The web site is dedicated
to helping families who are living with the challenges
of autism stay informed about breakthroughs involving
the genetics of autism.
Coordinated by the Center for Human Genetics at Duke University
Medical Center and Tufts University/New England Medical
Center, the web site is the first project of its kind
funded by NAAR. It's architecture allows visitors
to navigate the site easily and locate useful information,
read current news on autism-related genetics, and take
part in an on-line survey designed to help researchers
evaluate the genetic educational needs of families and
other people who visit the site.
The web site is organized by the following key sections:
* What is Autism - Provides an overall description
of the autism spectrum disorders, including diagnosis
information and genetic conditions associated with
autism.
* Genetics Overview - Features a glossary of terms
used in genetics and an explanation of tools used to
help researchers locate susceptibility genes and infor-
mation on recent investigations on certain chromo- somes.
* History of Autism - Includes a timeline of important
advances in autism diagnosis and autism research, as
well as genetics.
* Autism and Environmental Factors - Explores the
theory of complex inheritance and the possible rela- tionship
between the environment and autism spec- trum disorders.
* Family Stories - Shares the story of the Flores
family, Raleigh, N.C., which has two children with
autism.
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New
Emergency Notification System
available for Individuals with Autism
Emergency
Notification Systems, Inc.,
offers a system that provides critical protection for
individuals with autism. It protects anyone who may run
away or get lost, be mistaken by police as suspicious or
on drugs, or simply taking medications that emergency personnel
should know about during an emergency.
They offer
identification products and a 24-hour support
line that protects individuals with autism in emergencies.
All of their identification products feature the toll-free
number for this 24-hour support line. Through this support
line, the parties involved will immediately be provided
with detailed information about the individual's medical
condition, prescriptions, health insurance, and other important
information. They will also notify the individual's emergency
contacts, including parents, relatives, and a physician
or psychologist, that an emergency has occurred, where it
occurred, and where the person is being taken. They
can also handle Powers of Attorney and other legal situations
in an emergency.
They offer
five different types of customized identification jewelry,
including a key chain, a kid's clip, a bracelet, a necklace,
and a shoe tag for those sensitive to jewelry. They
also offer an identification card that provides details
about medical conditions, prescriptions, insurance information,
and other important information. In addition, they
offer caregiver cards for those providing care to
the individual to identify that they are the authorized
staff/caregiver for that person.
For more information about their products and services,
please contact the company by phone at (800) 303-5515.
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